News Release, 10 May 2001
Thousands of children with autism could be missing out on specialist services because of delays in diagnosis, according to the Foundation for People with Learning Disabilities, part of the Mental Health Foundation. It is estimated that as many as one in every 200 people in the UK has an autistic spectrum disorder, but sometimes it is not diagnosed until the child is 11, or even older.
Parents will now find it easier to recognise autism in their child, as the Foundation for People with Learning Disabilities has produced a new booklet about the condition. All About Autistic Spectrum Disorders is a free booklet designed for parents, carers and other family members. As well as helping parents to ensure that their child is diagnosed as soon as possible, it will also benefit parents whose child has already been diagnosed.
"There is still a great deal of misunderstanding about autistic spectrum disorder and a lack of information available to parents" said Hazel Morgan, Head of the Foundation for People with Learning Disabilities. "Time and again we hear from parents who, upon diagnosis, were sent away with little idea of the implications. Often they received very little information from professionals and ended up turning to other parents for advice. This booklet will make it easier for parents to understand autism and to help their child."
People with an autistic spectrum disorder usually have difficulty with communication, including talking and non-verbal signs, such as making eye contact. They may take things too literally; when asked "Can you get your coat?" a child may simply answer "Yes" but not actually do anything about it. They also have problems understanding and coping with different social situations; so a change in routine or an unexpected visitor at home could make a child very distressed. These problems can leave a child unable to play with others and very isolated, as if they are in a world of their own.
The Foundation's booklet describes the different kinds of autistic spectrum disorder, including Asperger's syndrome, the ways in which they can be identified and the implications for families and children. It answers the most common questions such as what causes autism, if children can 'grow out of it' and whether medication can help. It also offers tips on how parents can help their child and communicate with them more effectively. Simple things like speaking in short phrases and saying the child's name before asking them to do something can make a real difference.
All about Autistic Spectrum Disorders. Booklet, 2001. Is available to read online
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Note to editors
For further information and interview requests contact please contact the press office on 020 7803 1105 / 1128 or email the press office
The Foundation promotes the rights, quality of life and opportunities of people with learning disabilities and their families. We do this by working with people with learning disabilities, their families and those who support them to:
- Do research and develop projects that promote social inclusion and citizenship
- Support local communities and services to include people with learning disabilities
- Make practical improvements in services for people with learning disabilities
- Spread knowledge and information.
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